晚期癌症患者自我感受负担与家庭亲密度和适应性的相关性研究被引量：20

Patients with adanced cancer self-perceived burden with family cohesion and adaptability correlation studies

导出

摘要目的探讨晚期癌症患者自我感受负担、家庭亲密度和适应性的相关性.方法采用中文版自我感受负担量表（SPBS）、中文版家庭亲密度和适应性量表（FACESⅡ-CV）对139例晚期癌症患者进行调查,并分析其相关性,患者家庭亲密度和适应性状况与国内常模比较.结果患者SPBS总分（35.83±5.59）分,处于中度水平,3个维度的条目均分由高到低依次为经济负担（4.12±0.86）分、身体负担（3.63±0.53）分、情感负担（3.49±0.63）分;患者家庭亲密度和适应性调查,实际亲密度得分（67.96±9.35）分、理想亲密度得分（83.68±6.05）分、不满意程度得分（15.71±9.39）分,均高于国内常模,实际适应性得分（48.00±6.92）分、理想适应性得分（56.47±4.99）分则低于国内常模,差异有统计学意义（P〈0.01或0.05）;患者SPBS总分与实际亲密度呈负相关（r=-0.186,P〈0.05）,与亲密度不满意程度呈正相关（r=0.175,P〈0.05）;回归分析,性别（B=0.236,P〈0.01）、家庭医疗负担（B=0.183,P〈0.05）、家庭实际亲密度（B=-0.111,P〈0.05）是患者自我感受负担的影响因素.结论晚期癌症患者自我感受负担与家庭亲密度和适应性密切相关.提示医护人员应重视患者家庭心理干预,有针对性地对患者和家属提供情感联系,降低晚期癌症患者的负性情绪. Objective To investigate the correlation of self perceived burden, family cohesion and adaptability in advanced cancer patients. Methods The Chinese version self perceived burden scale （SPBS）, Chinese version of family cohesion and Adaptability Scale （FACES-CV） were used to investigate 139 cases of patients with advanced cancer, and to analyze their correlation with family cohesion and adaptability compared with the norm. Results Patients＇ self perceived burden score （35.83 ± 5.59） points in the moderate level. The 3 dimensions of the item score from high to low was economic burden （4.12 ± 0.86）, body burden （3.63 ± 0.53）, emotional burden （3.49 ± 0.63）; survey of patients with family cohesion and adaptability, intimacy score （67.96 ± 9.35） points, the ideal intimacy score （83.68 ± 6.05）, satisfaction score （15.71 ± 9.39） points, were higher than the national norm, the actual adaptability score （48.00 ± 6.92） and ideal adaptability score （56.47 ± 4.99） points lower than the national norm, the difference was statistically significant （P〈0.01 or 0.05）. Patients＇ self perceived burden score and intimacy was negatively correlated （r=-0.186, P〈0.05）, and positively correlated with intimacy satisfaction （r=0.175, P〈0.05）. Regression analysis, gender （B=0.236, P〈0.01）, family medical burden （B=0.183, P〈0.05）, actual family cohesion （B=-0.111, P〈0.05） was the influencing factors of patients＇ self perceived burden. Conclusions The burden of self perception in advanced cancer patients is closely related to family cohesion and adaptability. It is suggested that the medical staff should pay attention to the family psychological intervention and provide emotional connection for the patients and their families, so as to reduce the negative emotion of the patients with advanced cancer.