目的系统评价急性白血病患儿照顾者的真实体验及需求。方法计算机检索PubMed、Ebsco、Web of science、Medline及Cochrane Library 5个英文数据库和中国知网(CNKI)、万方及维普3个中文数据库中关于急性白血病患儿照顾者真实体验及需求...目的系统评价急性白血病患儿照顾者的真实体验及需求。方法计算机检索PubMed、Ebsco、Web of science、Medline及Cochrane Library 5个英文数据库和中国知网(CNKI)、万方及维普3个中文数据库中关于急性白血病患儿照顾者真实体验及需求的质性研究,检索时限从建库至2020年11月。采用澳大利亚JBI循证卫生保健中心质性研究质量评价标准进行质量评价后,采用Meta汇集性整合方法对纳入的文章进行整合。结果共纳入15篇文献,提炼出56个明确结果,归纳形成9个新类别,最终形成3个整合结果:(1)急性白血病患儿照顾者因支持系统较薄弱且要承担多重压力和负担而出现了多方面的担忧和复杂的心理体验。(2)儿童急性白血病是一种家庭性疾病,多维度影响到照顾者个人、家庭和社会方面。(3)急性白血病患儿照顾者因缺乏疾病知识和应对策略,渴望得到多方面的照护与支持,产生了多元化需求。结论家庭、医疗机构和社会应多关注急性白血病患儿照顾者,并为其提供心理、社会及经济支持,以促进白血病患儿及照顾者的身心健康。展开更多
BACKGROUND This study employed a phenomenological research approach within qualitative research to explore the challenges encountered by elderly individuals with temporary colostomies in managing their daily lives and...BACKGROUND This study employed a phenomenological research approach within qualitative research to explore the challenges encountered by elderly individuals with temporary colostomies in managing their daily lives and care needs.Protecting the anus surgery combined with temporary colostomy has emerged as a prevalent treatment modality for low rectal cancer.However,the ileostomy is susceptible to peri-stoma skin complications,as well as fluid,electrolyte,and nutritional imbalances,posing challenges to effective management.The successful selfmanagement of patients is intricately linked to their adjustment to temporary colostomy;nonetheless,there remains a dearth of research examining the factors influencing self-care among temporary colostomy patients and the obstacles they confront.AIM To investigate the lived experiences,perceptions,and care requirements of temporary colostomy patients within their home environment,with the ultimate goal of formulating a standardized management protocol.METHODS Over the period of June to August 2023,a purposive sampling technique was utilized to select 12 patients with temporary intestinal stomas from a tertiary hospital in Shanghai,China.Employing a phenomenological research approach,a semi-structured interview guide was developed,and qualitative interviews were conducted using in-depth interview techniques.The acquired data underwent coding,analysis,organization,and summarization following Colaizzi’s seven-step method.RESULTS The findings of this study revealed that the experiences and needs of patients with temporary intestinal stomas can be delineated into four principal themes:Firstly,Temporary colostomy patients bear various burdens and concerns about the uncertainty of disease progression;secondly,patients exhibit limited self-care capabilities and face information deficits,resulting in heightened reliance on healthcare professionals;thirdly,patients demonstrate the potential for internal motivation through proactive self-adjustment;and finally,patients express a signifi展开更多
Research on international students’learning experiences pays much less attention to those studying semester and/or year-long programmes in a country that differs significantly from their home country with respect to ...Research on international students’learning experiences pays much less attention to those studying semester and/or year-long programmes in a country that differs significantly from their home country with respect to culture and the education system.Adopting transformative learning theory as the theoretical framework,this paper explores the learning effectiveness of students on such programme in a Chinese and in a UK university.It analyses the narratives of 27 students in relation to their cognitive and behavioural activities and also their self-reflective and collaborative reflective activities.The findings indicate that these students only partially achieved transformative learning.The main reasons are:(1)the duration of this type of programme was not long enough to achieve a full transformation and(2)both host universities did not include reflection in the learning process properly.This paper makes a contribution to cross-border learning literature in the Chinese and the UK contexts.展开更多
文摘目的系统评价急性白血病患儿照顾者的真实体验及需求。方法计算机检索PubMed、Ebsco、Web of science、Medline及Cochrane Library 5个英文数据库和中国知网(CNKI)、万方及维普3个中文数据库中关于急性白血病患儿照顾者真实体验及需求的质性研究,检索时限从建库至2020年11月。采用澳大利亚JBI循证卫生保健中心质性研究质量评价标准进行质量评价后,采用Meta汇集性整合方法对纳入的文章进行整合。结果共纳入15篇文献,提炼出56个明确结果,归纳形成9个新类别,最终形成3个整合结果:(1)急性白血病患儿照顾者因支持系统较薄弱且要承担多重压力和负担而出现了多方面的担忧和复杂的心理体验。(2)儿童急性白血病是一种家庭性疾病,多维度影响到照顾者个人、家庭和社会方面。(3)急性白血病患儿照顾者因缺乏疾病知识和应对策略,渴望得到多方面的照护与支持,产生了多元化需求。结论家庭、医疗机构和社会应多关注急性白血病患儿照顾者,并为其提供心理、社会及经济支持,以促进白血病患儿及照顾者的身心健康。
基金The study was reviewed and approved by the Science and Research Office of Tong Ren Hospital(Shanghai), No. AF/SC-08/04.0.
文摘BACKGROUND This study employed a phenomenological research approach within qualitative research to explore the challenges encountered by elderly individuals with temporary colostomies in managing their daily lives and care needs.Protecting the anus surgery combined with temporary colostomy has emerged as a prevalent treatment modality for low rectal cancer.However,the ileostomy is susceptible to peri-stoma skin complications,as well as fluid,electrolyte,and nutritional imbalances,posing challenges to effective management.The successful selfmanagement of patients is intricately linked to their adjustment to temporary colostomy;nonetheless,there remains a dearth of research examining the factors influencing self-care among temporary colostomy patients and the obstacles they confront.AIM To investigate the lived experiences,perceptions,and care requirements of temporary colostomy patients within their home environment,with the ultimate goal of formulating a standardized management protocol.METHODS Over the period of June to August 2023,a purposive sampling technique was utilized to select 12 patients with temporary intestinal stomas from a tertiary hospital in Shanghai,China.Employing a phenomenological research approach,a semi-structured interview guide was developed,and qualitative interviews were conducted using in-depth interview techniques.The acquired data underwent coding,analysis,organization,and summarization following Colaizzi’s seven-step method.RESULTS The findings of this study revealed that the experiences and needs of patients with temporary intestinal stomas can be delineated into four principal themes:Firstly,Temporary colostomy patients bear various burdens and concerns about the uncertainty of disease progression;secondly,patients exhibit limited self-care capabilities and face information deficits,resulting in heightened reliance on healthcare professionals;thirdly,patients demonstrate the potential for internal motivation through proactive self-adjustment;and finally,patients express a signifi
文摘Research on international students’learning experiences pays much less attention to those studying semester and/or year-long programmes in a country that differs significantly from their home country with respect to culture and the education system.Adopting transformative learning theory as the theoretical framework,this paper explores the learning effectiveness of students on such programme in a Chinese and in a UK university.It analyses the narratives of 27 students in relation to their cognitive and behavioural activities and also their self-reflective and collaborative reflective activities.The findings indicate that these students only partially achieved transformative learning.The main reasons are:(1)the duration of this type of programme was not long enough to achieve a full transformation and(2)both host universities did not include reflection in the learning process properly.This paper makes a contribution to cross-border learning literature in the Chinese and the UK contexts.
