摘要
[目的]系统分析炎症性肠病病人的患病体验。[方法]检索The Cochrane Library、PubMed、Medline、Web of Science、中国知网、万方和维普数据库,纳入炎症性肠病病人患病体验相关的质性研究,在进行质量评价之后进行整合与分析。[结果]共纳入15篇相关文献,将研究结果重新归纳分类,得出7个主题:对炎症性肠病的认识、沉重的心理压力、与疾病周旋、自我概念的改变、应对炎症性肠病的方式、自我调整与寻求帮助、信息支持与情感支持。[结论]炎症性肠病病人的患病体验较为复杂,沉重的心理压力和需要支持是较为显著的体验,个体化的心理干预、专业的疾病信息支持和良好的社会支持十分重要。
Objective:To systematically analyze the disease experience of patients with inflammatory bowel disease.Methods:The Cochrane Library,PubMed,Medline,Web of Science,CNKI,Wanfang and VIP databases were searched,and qualitative researches related to disease experience of patients with inflammatory bowel disease were included.After quality evaluation,the studies were integrated and analyzed.Results:A total of 15related literatures were included.The research results were reclassified,and 7subjects were obtained:knowledge of IBD,heavy psychological pressure,rotation with disease,change of self-concept,coping style of IBD,self-adjustment and seeking help,information support and emotional support.Conclusions:Patients with inflammatory bowel disease had complex disease experience,and heavy psychological pressure and need for support were relatively obvious experiences.Individualized psychological intervention,professional disease information support and good social support were very important.
作者
卜凡莉
黄骞
王珂
黄迎春
彭南海
BU Fanli;HUANG Qian;WANG Ke;HUANG Yingchun;PENG Nanha(Nanhai(Medical School of Nanjing University,Jiangsu 210092 China)
出处
《护理研究》
北大核心
2019年第5期754-761,共8页
Chinese Nursing Research
基金
国家自然科学基金面上项目
编号:81670508
关键词
炎症性肠病
克罗恩病
溃疡性结肠炎
患病体验
质性研究
心理压力
社会支持
Meta-整合
inflammatory bowel disease
Crohn′s disease
ulcerative colitis
disease experience
qualitative research
psychological stress
social support
Meta-aggregative
