摘要
目的识别并描述孤独症儿童家庭管理特征的潜在类别及其主要影响因素。方法便利抽样法选取广州市某三级甲等医院儿童行为发育中心门诊就诊的328名孤独症儿童父母为研究对象,采用一般资料调查表及慢性病儿童家庭管理量表对其进行调查,使用潜在剖面分析方法识别孤独症儿童家庭管理特征的潜在类别,并采用多元Logistic回归分析不同类别的影响因素。结果孤独症儿童的家庭管理特征可分为“管理有效型”(16.2%)、“基本适应型”(52.7%)及“管理困难型”(31.1%),确诊时间、居住地、经济水平、孤独症专业干预情况、父母健康和参与干预情况是家庭管理特征潜在类别的影响因素(均P<0.05)。结论大部分孤独症儿童的家庭管理存在不同程度的困难,应关注确诊时间长、居住于农村、经济收入低家庭的孤独症儿童照护与干预情况,重视孤独症儿童父母的健康状况,为孤独症儿童接受专业干预提供支持。
Objective To identify and describe the potential categories of family management and the major influencing factors for children with autism spectrum disorder(ASD).Methods A total of 328 parents of children with ASD visited the Department of Outpatient of the Child Developmental Behavior Center of a level-3 grade-A hospital in Guangzhou were selected by the convenience sampling method as research objects and investigated by a general information questionnaire and Family Management Scale for Children with Chronic Diseases.Latent profile analysis was used to explore the potential categories of family management characteristics in children with ASD and multiple logistic regression analysis was used to analyze the influencing factors of the categories.Results The ASD family management patterns were categorized into“Effective management style”(16.2%),“Basic adaptive management style”(52.7%),and“Difficult management style”(31.1%).Time of final diagnosis,location of family residence,economic level,profession intervention in ASD,parental health condition,and parental participation in intervention were the influencing factors of the potential categories of family management characteristics(all P<0.05).Conclusions Various degrees of difficulties exist in family management for most children with ASD.Attention should be paid to the care and intervention of children ASD in the families with a long time of ASD final diagnosis,living in rural areas,and with low income.It is also necessary to pay attention to the health condition of parents and supporting children with ASD receiving professional intervention.
作者
刘劭菲
陈妙盈
黄宝琴
冀彦
邓涛
张利峰
LIU Shaofei;CHEN Miaoyin;HUANG Baoqin;JI Yan;DENG Tao;ZHANG Lifeng(School of Nursing,Sun Yat-sun University,Guangzhou 510080,Guangdong Province,China;Child Developmental Behavior Center,The Third Affiliated Hospital,Sun Yat-Sen University,Guangzhou 510630,Guangdong Province,China;Department of Nursing,The Third Affiliated Hospital,Sun Yat-Sen University,Guangzhou 510630)
出处
《军事护理》
CSCD
北大核心
2023年第8期25-29,共5页
MILITARY NURSING
关键词
孤独症
儿童
父母
家庭管理
潜在剖面分析
影响因素
autism spectrum disorder
child
parent
family management
latent profile analysis
influencing factor
