摘要
目的探讨妇科恶性肿瘤患者同伴支持者在同伴支持活动中对自身角色的认知及体验。方法采用质性研究中的现象学研究方法,对16例妇科恶性肿瘤同伴支持者进行个人半结构式深入访谈,根据Colaizzi 7步分析法对原始资料进行整理分析。结果妇科恶性肿瘤同伴支持者对自身角色认知可归纳为公益志愿者、信息提供者、情感支持者、医患沟通的桥梁4个主题。同伴支持者的体验包括自我成就感及价值感、病耻感降低及自信心增强、对自身的教育和鞭策、无负性情绪及不良影响、存在挑战。在同伴支持过程中,同伴支持者主要面临担心不能满足患者需求、棘手案例难以处理及同伴支持不确定感3个挑战。结论妇科恶性肿瘤同伴支持者具有多重角色,在同伴支持中发挥重要作用,以内行患者的身份发挥自己的潜能,达到实现自我价值的最高境界,但仍面临一些挑战。临床护理工作者应关注同伴支持者的体验。
Objective To explore the peer supporter＇s role cognition and subjective experiences of providing peer support for women with gynecological cancer. Methods Semi-structured interviews were conducted with 16 peer supporters who provided peer support for gynecological cancer patients. Data were analyzed based on Colaizzi＇s phenomenological methodology. Results Four themes of peer supporter＇s role were extracted,including public wel-fare volunteer,information provider,emotional supporter and bond between doctors and patients. Experiences of peer supporters included sense of achievement and self-worth,relieved stigma and enhanced self-confidence,educational and spurring meanings ,without negative emotions or adverse consequences. Three main categories of challenges were identified ,including concerns of not meeting patient＇s needs ,handling with difficult cases ,and feelings of uncertainty. Conclusion Peer supporters of gynecological cancer patients have multiple roles and play an important role in support process. Peer supporters provide potential influence as patients,and achieve self-realization,but face challenges as well. Experiences of peer supporters should be paid attention ,and necessary supports should be given.
作者
王霞
丁焱
游菁
蔡志芳
安培
蔡慧媛
WANG Xia;DING Yan;YOU Jing;CAI Zhifang;AN Pei;CAI Huiyuan(Department of Nursing,Obstetrics ＆ Gynecology Hospital of Fudan University,Shanghai,200090,China)
出处
《中华护理杂志》
CSCD
北大核心
2018年第11期1292-1297,共6页
Chinese Journal of Nursing
基金
上海市卫生和计划生育委员会重要薄弱学科建设项目(2015ZB0303)
CMB护理青年教师科研基金项目(13-168-201502)
