摘要
关注了随着慢性病大数据快速积累和广泛应用所引发的隐私保护问题,系统分析了慢性病大数据管理中的隐私保护困境,重点从五个方面进行探讨:大数据的安全采集、使用与共享,使用目的与控制权,隐私保护与合规性,公众教育与知情同意,以及法律法规与监管。针对这些挑战,提出了一系列策略,包括加强数据脱敏和匿名化技术、建立透明的数据使用和共享机制、加强数据安全审计和监管、患者教育以及依法建立隐私保护框架。这些策略旨在促进慢性病大数据管理的可持续发展,同时保护患者的隐私权益,为解决管理中的困境提供有效途径。
This study focuses on the privacy protection issues arising from the rapid accumulation and extensive application of big data in chronic disease management.It systematically analyzes the privacy protection dilemmas in the management of chronic disease big data,exploring five key aspects:the safe collection,use,and sharing of big data,usage purpose and control,privacy protection and compliance,public education and informed consent,and legal and regulatory frameworks.Strategies proposed to address these challenges include enhancing data anonymization and de-identification techniques,establishing transparent mechanisms for data use and sharing,strengthening data security audits and regulation,patient education,and creating legal frameworks for privacy protection.These strategies aim to promote sustainable development in managing chronic disease big data while protecting patient privacy,offering effective solutions for the challenges encountered in management.
作者
周梅珊
邬凤娟
ZHOU Meishan;WU Fengjuan(Medical Ethics Committee,Shunde Hospital,Southern Medical University/The First People's Hospital of Shunde,Foshan,Foshan 528308,China)
出处
《医学与哲学》
北大核心
2024年第5期21-26,共6页
Medicine and Philosophy
关键词
慢性病
大数据
隐私保护
chronic disease
big data
privacy protection
