摘要
目的使用癫痫儿童健康相关生活质量量表(QOLCE-16)调查癫痫儿童的生活质量现状及其影响因素。方法采用便利抽样法,选取2021年5月—2022年4月在上海市儿童医院癫痫中心就诊的289例癫痫儿童及其父母为研究对象进行调查,采用一般资料调查表、癫痫疾病知识问卷、社会支持评定量表(SSRS)、QOLCE-16向患儿父母询问患儿相关情况。采用逐步线性回归分析癫痫儿童生活质量的影响因素。本研究共发放问卷289份,回收有效问卷261份,问卷有效回收率为90.31%(261/289)。结果261例癫痫儿童QOLCE-16得分为(71.05±14.04)分。逐步线性回归分析结果显示,是否为单亲家庭、有无合并症、对社会支持的利用度、癫痫疾病知识问卷的正确率为癫痫儿童生活质量的影响因素。结论癫痫儿童的健康相关生活质量有待进一步提升。在临床护理过程中,应关注患儿家庭情况,疏导负面情绪,鼓励积极配合治疗,帮助参与社会交流互动,提供以家庭为中心的健康教育,从而提高癫痫儿童生活质量。
Objective To investigate the current status of health-related quality of life(HRQoL)in children with epilepsy using the Quality of Life in Childhood Epilepsy Questionnaire(QOLCE-16)and identify its influencing factors.Methods Totally 289 epileptic children and their parents who visited the epilepsy center of Shanghai Children's Hospital from May 2021 to April 2022 were selected for the study by convenience sampling.Data were collected using general information surveys,epilepsy knowledge questionnaires,Social Support Rating Scale(SSRS),and the QOLCE-16.A stepwise linear regression was performed to analyze the factors influencing the HRQoL of children with epilepsy.Out of 289 questionnaires distributed,261 valid responses were received,yielding a valid response rate of 90.31%(261/289).Results The QOLCE-16 score for the 261 children with epilepsy was(71.05±14.04).Stepwise linear regression revealed that single-parent family,presence of comorbidities,utilization of social support,and the accuracy rate of the epilepsy knowledge questionnaire were influencing factors for HRQoL in children with epilepsy.Conclusions The HRQoL in children with epilepsy requires further enhancement.Clinical nursing processes should pay attention to the child's family situation,alleviate negative emotions,encourage active treatment cooperation,assist in social interaction,and provide family-centered health education to improve the quality of life for children with epilepsy.
作者
杨洁
李爱求
唐平
刘银洁
杨利灵
Yang Jie;Li Aiqiu;Tang Ping;Liu Yinjie;Yang Liling(Department of Neurology,Shanghai Children's Hospital/Children's Hospital Affiliated to Shanghai Jiao Tong University School of Medicine,Shanghai 200040,China;Department of Nursing,Shanghai Children's Hospital/Children's Hospital Affiliated to Shanghai Jiao Tong University School of Medicine,Shanghai 200040,China;Department of Emergency Medicine,Shanghai Children's Hospital/Children's Hospital Affiliated to Shanghai Jiao Tong University School of Medicine,Shanghai 200062,China)
出处
《中华现代护理杂志》
2023年第35期4855-4860,共6页
Chinese Journal of Modern Nursing
基金
上海市儿童医院护理部自选科研课题(ETHLKY202003)。
关键词
癫痫
儿童
生活质量
社会支持
现状
影响因素
Epilepsy
Children
Quality of life
Social support
Current status
Influencing factors
