摘要
目的深入了解青少年特应性皮炎(AD)患者在校期间疾病管理的体验。方法本研究为质性研究。采用目的抽样法,于2022年1—11月选取南方医科大学皮肤病医院皮肤科收治的17例青少年AD住院患者为研究对象,进行半结构式访谈。根据Colaizzi 7步法对访谈内容进行整理分析。结果青少年AD患者在校期间疾病管理体验主要包括学习生活受到疾病影响(学习注意力不集中、睡眠障碍、容貌焦虑与负性社交);疾病管理应对冲突(皮肤保湿护理与时空冲突、皮损发作与体育运动冲突、复诊与上课冲突);需求支持不足(专业知识指导来源不足、老师对疾病认识不足、缺乏长期治疗的监督指导)3个主题。结论青少年AD患者在校学习生活受到疾病反复发作的困扰,缺乏良好的管理方法并且学校社会支持不足。医护人员应为患者及其家长、学校老师科普疾病知识,指导疾病规范管理方法,解决青少年AD患者在校期间疾病管理困境,提高患者疾病管理能力。
Objective To gain a deeper understanding of the disease management experience of adolescent atopic dermatitis(AD)patients during their school years.Methods This is a qualitative study.Using the purposive sampling method,a total of 17 adolescent AD inpatients admitted to Dermatology Department of Dermatology Hospital of Southern Medical University were selected as the research objects from January to November 2022,and a semi-structured interview was conducted.According to the Colaizzi 7-step method,the interview content was sorted out and analyzed.Results The disease management experience of adolescent AD patients during their school years mainly included the effect of diseases on their learning and life(lack of concentration in learning,sleep disorders,appearance anxiety and negative social interaction),conflicts in disease management and response(skin moisturizing care and spatiotemporal conflicts,skin lesion attacks and sports conflicts,follow-up visits and class conflicts)and insufficient demand support(insufficient sources of professional knowledge guidance,insufficient understanding of diseases by teachers and lack of supervision and guidance for long-term treatment).Conclusions Adolescent AD patients are plagued by repeated attacks of the disease and lack of good management methods and insufficient school social support.Medical staff should popularize disease knowledge for patients,their parents and school teachers,guide standardized disease management methods,solve the disease management difficulties of adolescent AD patients during school and improve the disease management ability of patients.
作者
何雪瑜
刘嘉琪
许珂
He Xueyu;Liu Jiaqi;Xu Ke(Department of Dermatology,Dermatology Hospital of Southern Medical University,Guangzhou 510095,China)
出处
《中华现代护理杂志》
2023年第32期4378-4383,共6页
Chinese Journal of Modern Nursing
关键词
青少年
特应性皮炎
自我管理
学校
质性研究
Adolescents
Atopic dermatitis
Self-management
School
Qualitative study
