摘要
目的系统评价注意缺陷多动障碍(ADHD)患儿父母的疾病治疗管理体验。方法检索PubMed、Embase、Cochrane Library、Web of Science、PsycINFO、Scopus、CINAHL、ProQuest、中国知网、万方数据库、维普网等数据库中关于ADHD患儿父母治疗管理体验的质性研究或混合研究,检索时限为建库至2022年10月8日。采用JBI循证卫生保健中心质性研究质量评价标准评价纳入的文献质量,使用Nvivo 11软件通过汇集性整合方法对结果进行整合。结果共纳入13篇文献,提炼出36个研究结果,归纳为10个新类别,整合成4个结果,分别为ADHD患儿父母的疾病认知影响就医行为、患儿父母在治疗过程中的心理调适、患儿父母的疾病应对、患儿治疗管理的社会资源需求。结论患儿父母在ADHD患儿的疾病治疗管理中承担的角色与责任非常重要,需加强ADHD疾病知识普及,提升父母疾病认知,重视父母心理状况,提供多途径的社会支持,满足患儿治疗及教育需求,推进个体化多学科综合管理体系构建,以改善ADHD患儿近远期结局。
Objective To systematically review the disease treatment and management experience of parents of children with attention deficit hyperactivity disorder(ADHD).Methods Qualitative or mixed studies on the treatment and management experience of parents of children with ADHD were searched in databases such as PubMed,Embase,Cochrane Library,Web of Science,PsycINFO,Scopus,CINAHL,ProQuest,China National Knowledge Infrastructure,WanFang Data,and VIP.The search period was from database establishment to October 8,2022.The quality of the included literature was evaluated using the quality evaluation criteria for qualitative research of the Joanna Briggs Institute Evidence-Based Health Care Center.Nvivo 11 software was used to integrate the results through aggregation integration methods.Results A total of 13 articles were included and 36 research results were extracted.The results were categorized into 10 new categories and formed into 4 integrated results,including the impact of disease cognition of parents of children with ADHD on medical seeking behavior,psychological adjustment of parents of children during treatment,disease response of parents of children,and social resource needs for treatment and management of children.Conclusions The role and responsibility of parents in the treatment and management of ADHD children are very important.We need to strengthen the popularization of knowledge about ADHD,enhance parents'awareness of the disease,pay attention to parents'psychological status,provide multi-channel social support,meet the treatment and educational needs of children,and promote the construction of an individualized and multidisciplinary comprehensive management system to improve the short-term and long-term outcomes of ADHD children.
作者
郑凡凡
叶清霞
王美懿
李冰肖
何丽兰
Zheng Fanfan;Ye Qingxia;Wang Meiyi;Li Bingxiao;He Lilan(School of Nursing,Jinan University,Guangzhou 510632,China;Department of Neonatology,the First Affiliated Hospital of Jinan University,Guangzhou 510630,China)
出处
《中华现代护理杂志》
2023年第26期3599-3606,共8页
Chinese Journal of Modern Nursing
基金
暨南大学第一临床医学院护理科研专项基金项目(2022227)。
关键词
注意缺陷多动障碍
儿童
父母
治疗管理
质性研究
Meta整合
Attention deficit hyperactivity disorder
Child
Parents
Treatment management
Qualitative research
Meta-synthesis
