摘要
为了解儿童肿瘤患者安宁疗护中家庭照护的现状、进展、主要内容及儿童肿瘤患者安宁疗护中家庭照护相关评估工具,综述国内外有关儿童肿瘤安宁疗护中家庭照护及其评估工具的相关文献,以安宁疗护中的家庭照护为切入点,探讨有效的家庭照护对于改善肿瘤患儿治疗效果、生命质量、预后以及其家人心理问题的影响,为持续完善儿童肿瘤患者的医院—家庭—社区的照护模式,发挥家庭在安宁疗护中的主观能动性,推动肿瘤患儿家庭照护的继续发展提供依据。
To understand the current situation, progress, main contents, and the relevant assessment tools of family care in palliative for pediatric oncology patients, this paper reviewed the relevant literature on family care in palliative for pediatric oncology patients and its assessment tools at home and abroad. Taking family care in palliative care as the starting point, this paper discussed the effect of effective family care on improving the treatment outcome, quality of life, prognosis of pediatric oncology patients and the psychological problems of their families, and to provide a basis for continuing to improve the hospital-family-community care model for pediatric oncology patients, bringing into play the active role of family in palliative care, and promoting the continued development of family care for pediatric oncology patients.
作者
何晓娜
焦培娟
刘鑫鑫
赵越
HE Xiaona;JIAO Peijuan;LIU Xinxin;ZHAO Yue(School of Nursing,Xinjiang Medical University,Urumqi 830000,China)
出处
《中国医学伦理学》
2022年第9期1000-1006,共7页
Chinese Medical Ethics
基金
新疆维吾尔自治区自然科学基金“安宁疗护形势下肿瘤患儿主要家庭照顾者需求模型的构建”(2020D01C176)。
关键词
儿童肿瘤患者
安宁疗护
家庭照护
Pediatric Oncology Patients
Palliative Care
Family Care
