摘要
目的探讨残疾儿童照护者的生活质量及其影响因素。方法2019年12月至2020年1月以及2020年8月至9月,方便抽样选取上海市残疾儿童主要照护者496例。采用简版生活质量量表(SF-12)测量照护者生活质量,以多元线性回归方法分析照护者生活质量的相关影响因素。结果残疾儿童照护者的生理健康评分为(51.67±8.11),心理健康评分为(42.10±12.66)。被照护儿童年龄6~18岁(B=-1.783,95%CI-3.279~-0.287,P=0.020)、情绪不稳定(B=2.719,95%CI 1.254~4.184,P<0.001)、照护者为女性(B=-3.765,95%CI-6.578~-0.953,P=0.009)、对公共政策不满意(B=1.973,95%CI 0.367~3.578,P=0.016)的照护者生理健康评分较低;言语残疾(B=3.463,95%CI 0.053~6.873,P=0.047)的照护者生理健康评分较高。被照护儿童的残疾类型(B_(听力)=9.465,95%CI 5.107~13.823,P<0.001;B_(未定残)=5.999,95%CI 1.558~10.441,P=0.008)、有无伙伴(B=2.626,95%CI 0.352~4.901,P=0.024)、照护者学历(B_(高中或中专)=-4.701,95%CI-8.028~-1.374,P=0.006;B_(大专及以上)=-3.610,95%CI-6.604~-0.615,P=0.018)、家庭规模(B=2.616,95%CI 0.479~4.753,P=0.017)、家庭人均月收入(B_(<5000元)=-6.572,95%CI-9.136~-4.008,P<0.001;B_(5000~<10000元)=-4.932,95%CI-7.544~-2.319,P<0.001)对照护者的心理健康评分有影响。结论残疾儿童照护者的生活质量较低,尤其是心理健康。残疾儿童照护者的生活质量受儿童、照护者、家庭和社会环境等多个维度因素的影响。
Objective To explore the quality of life of caregivers of children with disabilities and its influencing factors.Methods From December,2019 to January,2020,and August to September,2020,a total of 496 family caregivers of children with disabilities were surveyed in Shanghai.The 12-item Short-form Health Survey(SF-12)was used to measure the quality of life of 496 caregivers,and multiple linear regression was performed to analyze the related factors.Results The score of physical component summary(PCS)of caregivers was(51.67±8.11),and the score of mental component summary(MCS)was(42.10±12.66).The scores of PCS were lower in caregivers with children aged 6 to 18 years(B=-1.783,95%CI-3.279 to-0.287,P=0.020),children with emotional instability(B=2.719,95%CI 1.254 to 4.184,P<0.001),female caregivers(B=-3.765,95%CI-6.578 to-0.953,P=0.009),and caregivers who were relatively dissatisfied with the policy(B=1.973,95%CI 0.367 to 3.578,P=0.016);and were higher in caregivers with children with speech disabilities(B=3.463,95%CI 0.053 to 6.873,P=0.047).The types of disabilities of children(B_(hearing)=9.465,95%CI 5.107 to 13.823,P<0.001;B_(undetermined)=5.999,95%CI 1.558 to 10.441,P=0.008),playmates of children(B=2.626,95%CI 0.352 to 4.901,P=0.024),education level of caregivers(B_(high middle school)=-4.701,95%CI-8.028 to-1.374,P=0.006;B_(high school)=-3.610,95%CI-6.604 to-0.615,P=0.018),family size(B=2.616,95%CI 0.479 to 4.753,P=0.017)and per capita monthly income(B_(<5000 Yuan)=-6.572,95%CI-9.136 to-4.008,P<0.001;B_(5000 to<10000 Yuan)=-4.932,95%CI-7.544 to-2.319,P<0.001)were associated with the scores of MCS.Conclusion The quality of life,especially the mental health,of caregivers of children with disabilities is poor.The influencing factors cover multiple dimensions such as caregivers,children,family and social environment.
作者
陈雨牵
孙梅
吕军
邱服冰
邱芬
李安巧
夏聪
郑红颖
CHEN Yu-qian;SUN Mei;LÜJun;QIU Fu-bing;QIU Fen;LI An-qiao;XIA Cong;ZHENG Hongying(School of Public Health,Fudan University,Shanghai 200032,China;China Research Center on Disability,Fudan University,Shanghai 200032,China;National Health Commission Key Laboratory of Health Technology Assessment(Fudan University),Shanghai 200032,China;Research Center of Physical Education,Sport and Health of Department of Physical Education,Shenzhen University,Shenzhen,Guangdong 518060,China;Institute for Sport Science/Department of Physical Education of Wuhan University of Technology,Wuhan,Hubei 430070,China;China Academy of ICF,Weifang,Shandong 261000,China;WHO-FIC Collaborating Center in China,Beijing 100068,China)
出处
《中国康复理论与实践》
CSCD
北大核心
2021年第10期1144-1151,共8页
Chinese Journal of Rehabilitation Theory and Practice
基金
国家社会科学基金重大项目(No.17ZDA078)
国家自然科学基金面上项目(No.71774030)
上海市哲学社会科学规划一般课题(No.2018BGL005)。
关键词
残疾儿童
照护者
生活质量
影响因素
children with disabilities
caregivers
quality of life
influencing factors