摘要
目的分析癫痫患儿家长的疾病认识、治疗依从性及日常生活管理情况。方法利用调查问卷的形式对1220名癫痫患儿家长进行调查及分析,问卷内容包括患儿及家长人口学特征、家长对疾病认识、治疗依从性、对患儿日常生活管理、心理情况5个方面。结果共收集有效问卷1180份。其中5.93%的家长认为依靠症状诊断癫痫,25.00%的家长认为依靠脑电图诊断癫痫;30.00%的家长认为发作1次即应治疗;30.00%的家长发作时按压人中穴;46.95%的家长认为发热是癫痫发作的诱因,12.97%的家长认为呕吐、腹泻可诱发癫痫发作,35.93%的家长认为癫痫发作与不规律服药有关;30.00%的家长认为癫痫患儿不能接种疫苗。21.95%的患儿有漏服药现象;10.00%左右的家长曾自行调整抗癫痫药物剂量。在日常生活管理方面大部分家长做得比较好。93.05%的家长因为孩子的疾病而焦虑,97.03%的家长认为需要关注患儿的心理健康。结论癫痫患儿家长对癫痫疾病的认识存在一定偏差,对癫痫发作的处理存在不恰当行为;对患儿的疾病普遍存在焦虑情绪,提示今后要针对性地加强这些方面的工作,进一步提高治疗依从性,从而提高癫痫患儿的治愈率及生活质量。
Objective To analyze the disease cognition,treatment compliance and daily life management of parents of children with epilepsy.Methods The parents of 1220 children with epilepsy were investigated and analyzed by the form of questionnaire.The questionnaire includes demographic characteristics of children and parents,parents'disease cognition,treatment compliance,daily life management of children and psychology five aspects.Results A total of 1180 valid questionnaires were collected.Among them,5.93%of parents thought that epilepsy should be diagnosed by symptoms,25.00%of parents believed that epilepsy should be diagnosed by EEG;30.00%of parents thought that one seizure should be treated;30.00%of parents pressed Renzhong acupuncture point during seizures;46.95%of parents thought that fever was the cause of epilepsy,and 12.97%of parents believed that vomiting and diarrhea could induce seizures;35.93%of parents thought that seizures were related to irregular medication;30.00%of parents believed that children with epilepsy could not be vaccinated.The 21.95%of children missed taking drugs;and about 10.00%of parents had adjusted the dose of antiepileptic drugs by themselves.Most parents do better in daily life management.The 93.05%of the parents were anxious because of their children's illness,and 97.03%of the parents thought that they needed to pay attention to the mental health of their children.Conclusion Parents of children with epilepsy have a certain deviation in their understanding of epileptic diseases,inappropriate behavior in the treatment of seizures.There is widespread anxiety about children's diseases.It is suggested that these aspects should be strengthened in the future,to further improve the treatment compliance,so as to improve the cure rate and quality of life of children with epilepsy.
作者
姜虹
黄绍平
王雪莹
JIANG Hong;HUANG Shaoping;WANG Xueying(Pediatrics Department,Weinan Maternal and Child Health Hospital,Weinan 714000;Pediatrics Department,the Second Affiliated Hospital of Xi'an Jiaotong University,Xi'an 710004,China)
出处
《临床医学研究与实践》
2021年第28期25-28,共4页
Clinical Research and Practice
关键词
癫痫
疾病认识
治疗依从性
日常生活管理
epilepsy
disease cognition
treatment compliance
daily life management
