摘要
目的 了解福建省儿童风湿医疗资源和儿童风湿性疾病收治情况.方法 现况调查.于2018年12月2日至2019年5月1日,以福建省19家省级或市级医院为单位,采用问卷调查表的形式进行调查.调查内容包括各医院儿童风湿医疗资源概况及各医院2014年1月1日至2018年12月1日9种儿童风湿性疾病收治情况.结果 此次参与调查的19家医院中综合医院15家、专科医院4家.开展儿童风湿专科的医院5家,19家医院中儿童风湿床位总数53~62张,占总床位数(3 137张)的1.7%~2.0%;19家医院儿童风湿医生共29名,占19家医院儿科医生总数2.6%(29/1 120).19家医院5年来共收治幼年特发性关节炎患儿201例,系统性红斑狼疮患儿295例、皮肌炎患儿39例、硬皮病患儿7例、炎症性肠病患儿57例、干燥综合征患儿9例、白塞病患儿5例、重叠综合征患儿0例、混合结缔组织病患儿0例.儿童风湿性疾病患儿占总住院例次的0.1%(613/625 214).结论福建省儿童风湿性疾病专科医疗资源不足,专科医生少,诊治率低.需要加强福建省儿童风湿病学科建设和发展.
Objective To investigate general condition of children's rheumatic disease associated medical resources in Fujian Province. Methods This questionnaire?based survey was conducted in 19 hospitals in Fujian province from December 2, 2018 to May 1, 2019. The questionnaire was designed to survey the general condition of the medical resources and the hospitalization of patients with rheumatic diseases from January 1, 2014 to December 1, 2018. Results In the 19 hospitals, there were 15 general hospitals and 4 children's hospitals, and only 5 hospitals had children's rheumatic specialist clinic. There were only 53-62 beds for rheumatic disease patients in the 19 hospitals, accounting for 1.7%-2.0% of the total inpatient beds (3 137). There are 29 pediatric rheumatologists in total, accounting for 2.6% (29/1 120) of the total pediatricians. In the past five years, 613 patients with rheumatic diseases, accounting for 0.1% (613/625 214) of total hospitalized patients, were treated in these hospitals. Among them, 201 had juvenile idiopathic arthritis, 295 had systemic lupus erythematosus, 39 had dermatomyositis, 7 had scleroderma, and 57 had inflammatory bowel disease, 9 had Sjogren's syndrome, 5 had Behcet's disease, and none had overlap syndrome or mixed connective tissue disease. Conclusion The medical resources of children rheumatic diseases in Fujian province are insufficient which need to be developed.
作者
易翠莉
杨晓晶
林克钊
吴谨准
肖继红
Yi Cuili;Yang Xiaojing;Lin Kezhao;Wu Jinzhun;Xiao Jihong(Department of Pediatrics,the First Affiliated Hospital of Xiamen University,Xiamen 361000,China)
出处
《中华儿科杂志》
CAS
CSCD
北大核心
2019年第12期913-916,共4页
Chinese Journal of Pediatrics
关键词
儿童
风湿性疾病
关节炎
红斑狼疮
系统性
Child
Rheumatic diseases
Arthritis
Lupus erythematosus,systemic
