摘要
目的探讨母亲与白血病患儿之间的疾病沟通情况，以帮助护士和患儿家长选择恰当的时机和信息与患儿进行疾病沟通。方法采用质性研究方法，以半结构式的访谈问卷对18名白血病患儿的母亲进行个体化的深入访谈，使用内容分析法分析资料。结果患儿母亲在病情告知方面，主要有患病初期和中期告知及至今仍未正面沟通3种情况，与患几沟通的疾病信息有正面信息、治疗相关信息、注意事项和负面信息。结论母亲的受教育程度和患儿年龄是影响疾病沟通的重要因素，医护人员和家长应该根据患儿的年龄、病程选择合适的疾病告知时机和沟通的信息，同时护士应该根据患儿对疾病的知晓情况做好与患儿的沟通。
Objective To explore communication about disease between mothers and children with leukemia,in order to help the parents communicate appropriately with their children. Methods In-depth interviews were conducted with 18 mothers of children with leukemia using a qualitative method, and the data were analyzed using content analysis. Results There were three types of diseases informed： being told during the first three months,being told during the intermediate stage and not being told so far. The information of mothers communicating with children included positive information of disease,relevant information of therapy,notifying information and negative information of disease. Conclusions Mothers＇ education levels and children＇s ages are two main factors affecting communication about disease between mothers and children with leukemia. During the hospitalization,we should choose appropriate opportunity and information to communicate with children with leukemia according children＇s ages and courses.
出处
《中华护理教育》
2010年第3期125-128,共4页
Chinese Journal of Nursing Education
基金
北京市教育委员会人文社会科学研究计划面上项目(SM200810025004)
关键词
白血病
儿童
母亲
信息交流
定性研究
Leukemia
Child
Mothers
Communication
Qualitative Research
