摘要
基因测序技术在数字技术的驱动下迅速发展的同时也对基因信息的私密性、伦理性带来冲击,引发了基因信息泄露、知情同意原则漏洞和基因歧视等伦理风险。目前隐私安全的伦理规约策略并不能完全适用于基因隐私保护,亟须突破传统伦理规约模式。基于此,在核心是以人为本的设计思维指导下创造性结合分形、系统、和谐、包容性等设计理论构想基因隐私安全的伦理规约新路径,完善基因隐私安全的伦理治理体系,推动基因技术“向上”和“向善”发展。
The rapid development of gene sequencing technology driven by digital technology has also impacted the privacy and ethics of genetic information,triggering ethical risks such as leakage of genetic information,loopholes in the principle of informed consent and genetic discrimination.The current ethical regulation strategy of privacy security is not fully applicable to genetic privacy protection,and it is urgent to break through the traditional ethical regulation model.Based on this,under the guidance of human-centered design thinking,the authors creatively combine the design theories of fractal,system,harmony and inclusiveness to conceptualize a new path of ethical regulation for genetic privacy and security,improve the ethical governance system of genetic privacy security,and promote the advancement of genetic technology towards both superior and ethical outcomes.
作者
吴雯
余菲
WU Wen;YU Fei(School of Marxism,Zhejiang Normal University,Jinhua 321004,China)
出处
《医学与哲学》
北大核心
2024年第15期12-16,共5页
Medicine and Philosophy
基金
2020年国家社会科学基金青年项目(20CZX058)
2023年中国博士后科学基金第73批面上资助项目(2023M733866)
2024年浙江省高等教育学会专项课题(KT2024064)。
关键词
基因隐私
隐私保护
设计思维
伦理设计
genetic privacy
privacy protection
design thinking
ethical design
