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基于结构-过程-结果的院外延伸护理对肝功能不全患儿生活质量及家属疾病认知的影响

Effects of Extended Out-of-hospital Care Based on Structure-process-outcome on Quality of Life of Children with Hepatic Insufficiency and Family’s Disease Perception
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摘要 目的:探讨基于结构—过程—结果的院外延伸护理对肝功能不全患儿生活质量及家属疾病认知的影响,为临床护理提供依据。方法:选取2019年1月—2022年2月河南省儿童医院收治的60例肝功能不全患儿作为研究对象,根据随机数表法将其分为对照组与试验组,每组各30例。对照组采用常规院外延伸护理,试验组实施基于结构—过程—结果的院外延伸护理。比较两组患儿干预前后的家属疾病认知水平(家属疾病认知调查问卷评分)及患儿生活质量[中文版儿童生活质量普通适用核心量表4.0(PedsQL4.0)评分]情况。结果:干预3个月后,试验组患儿家属发病原因、临床表现、治疗方案、护理要点维度评分均高于对照组,差异有统计学意义(t=5.858、6.282、6.475、5.902,P<0.05)。干预3个月后,试验组患儿生理功能、情感功能、社会功能、角色功能维度评分均高于对照组,差异有统计学意义(t=3.919、4.633、5.460、4.463,P<0.05)。结论:基于结构—过程—结果的院外延伸护理能够提高肝功能不全患儿家属疾病认知水平,改善患儿的生活质量。 Objective:To investigate the impact of structure-process-outcome-based out-of-hospital extended care on the quality of life of children with hepatic insufficiency and the family’s perception of the disease,and to provide a basis for clinical care.Methods:60 cases of children with hepatic insufficiency admitted to the hospital from January 2019 to February 2022 were selected as the study subjects,and were divided into the control group and the experimental group according to the random number table method,with 30 cases in each group.The control group used conventional out-of-hospital extended care,and the experimental group implemented structure-process-outcome-based out-of-hospital extended care.Family disease awareness level and children’s quality of life before and after the intervention were compared between the two groups.Results:After 3 months of intervention,the scores of the family members of the children in the experimental group were higher than those of the control group on the dimensions of cause of morbidity,clinical manifestations,treatment options,and points of care,and the difference was statistically significant(t=5.858,6.282,6.475,5.902;P<0.05).After 3 months of intervention,the children in the experimental group had higher scores than the control group in the dimensions of physical functioning,emotional functioning,social functioning,and role functioning,and the difference was statistically significant(t=3.919,4.633,5.460,4.463;P<0.05).Conclusion:Extended out-of-hospital care based on structure-process-outcome improves disease awareness and quality of life for families of children with hepatic insufficiency.
作者 代明明 赵青青 万园园 Dai Mingming;Zhao Qingqing;Wan Yuanyuan(Department of Gastroenterology,Henan Children’s Hospital,Zhengzhou,Henan,450003,China)
出处 《黑龙江医学》 2024年第5期627-629,共3页 Heilongjiang Medical Journal
关键词 肝功能不全 结构—过程—结果理论 院外延伸护理 家属疾病认知 患儿生活质量 Hepatic insufficiency Structure-process-outcome theory Extended out-of-hospital care Family disease awareness Quality of life of the child
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