摘要
宫内儿科学是以胎源性疾病防治为主要目的,研究从配子、受精卵、胚胎开始序贯至儿童青少年、青春期乃至全生命周期的疾病早期预防、筛查、诊断及治疗的一门围产医学再发展的胎儿全科学。医学伦理学为这门学科的规范发展提供了有力的支撑。概述了宫内儿科学的形成与发展,分析了宫内儿科学服务主体的脆弱性,梳理了其在出生缺陷防控、胎儿宫内诊疗和多学科协作诊疗中的伦理问题。提出了宫内儿科学应遵循母胎利益第一原则、尊重原则、不伤害原则的医学伦理原则。最后,提出涉及宫内儿科学临床及研究项目伦理审查的建议:加强伦理委员会在临床实践中的咨询服务作用,适时推出临床研究的伦理审查指导原则,提升医务工作者的伦理意识。
In-utero pediatrics is a fetal general medicine for perinatal medicine redevelopment,with the main purpose of preventing and treating fetal diseases,which studies the early prevention,screening,diagnosis,and treatment of diseases from gametes,fertilized eggs,and embryos sequential to children,adolescents,adolescence,and even the entire life cycle.Medical ethics provides strong support for the normative development of this discipline.This paper summarized the formation and development of inutero pediatrics,analyzed the vulnerability of service subjects within in-utero pediatrics,and sorted out their ethical issues in the prevention and control of birth defects,fetal intrauterine diagnosis and treatment,as well as multidisciplinary collaborative diagnosis and treatment.It was proposed that in-utero pediatrics should follow the medical principle of maternal and fetal interests first,the principle of respect,and the principle of no harm.Finally,suggestions for ethical review of clinical and research projects on in-utero pediatrics were proposed,including strengthening the advisory service role of the ethics committee in clinical practice,timely launching the guidelines of ethical review for clinical research,and enhancing the ethical awareness of medical staff.
作者
施敏
黄琦程
潘曙明
周吉银
SHI Min;HUANG Qicheng;PAN Shuming;ZHOU Jiyin(Medical Ethics Committee,Xinhua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine,Shanghai 200092,China;Clinical Medical Research Center,the Second Affiliated Hospital of Army Medical University,Chongqing 400037,China)
出处
《中国医学伦理学》
北大核心
2024年第2期189-193,共5页
Chinese Medical Ethics
基金
2022年陆军军医大学人文社会科学基金重点项目“我市涉及人的健康相关研究伦理治理的现状与对策研究”(2022XRW02)。
关键词
宫内儿科学
新兴学科
医学伦理
伦理审视
in-utero pediatrics
emerging discipline
medical ethics
ethical review
