摘要
目的调查急性白血病患儿主要照顾者准备度现状,探讨其影响因素,为后续制订针对性护理干预方案提供理论依据。方法利用便利抽样法,采用一般资料调查表、照顾者准备度量表、Herth希望量表、照顾者照顾能力量表及疾病不确定感家属量表对2021年6—12月中国医学科学院血液病医院收治的急性白血病住院患儿主要照顾者160名进行横断面问卷调查,采用描述性分析、Mann-Whitney U检验及Kruskal-Wallis H检验、Spearman秩相关分析、多元逐步线性回归分析进行统计分析。结果有效回收问卷159份,男13名,女146名,年龄(34.61±8.60)岁。急性白血病住院患儿主要照顾者的准备度总分为(26.47±7.53)分,希望水平总分为(37.72±4.11)分,疾病不确定感总分为(61.96±17.02)分,照顾者照顾能力总分为(15.06±12.94)分。急性白血病住院患儿主要照顾者准备度与希望水平、照顾能力呈正相关(r=0.166、0.254,均P<0.05),与疾病不确定感呈负相关(r=-0.300,P<0.05)。多元逐步线性回归分析显示,照顾者疾病不确定感、照顾者性别、有无共同照顾者、照顾者希望水平是照顾者准备度主要影响因素,可解释其20.4%的变异。结论急性白血病住院患儿主要照顾者准备度处于中等水平,临床中应重点关注男性、对疾病认知不足、无共同照顾者、希望水平低的主要照顾者,及时采取针对性措施,提高照顾者准备度,改善照护质量。
Objective To investigate the current status and influencing factors of care preparedness in primary caregivers of children with acute leukemia,so as to provide theoretical basis for targeted nursing intervention plans in the future.Methods A total of 160 primary caregivers of children with acute leukemia in Hematology Hospital of the Chinese Academy of Medical Sciences recruited by convenient sampling were investigated by the general data questionnaire,the Preparedness for Caregiving Scale,the Herth Hope Index,the Family Caregiver Task Inventory and the Mishel Uncertainty in Illness Scale-Family Member Form.Descriptive analysis,Mann-Whitney U test,Kruskal-Wallis H test,Spearman rank correlation and multiple stepwise liner regression were used for statistical analysis.Results One hundred and fifty-nine questionnaires were effectively collected,including 13 males and 146 females,aged(34.61±8.60)years old.The total score of care preparedness,hope,uncertainty in illness,care ability for caregivers were(26.47±7.53),(37.72±4.11),(61.96±17.02),(15.06±12.94)points.The total score of care preparedness for caregivers was negatively correlated with the score of uncertainty in illness(r=-0.300,P<0.05),and positively correlated with the hope and care ability of main caregivers(r=0.166,0.254,both P<0.05).Caregivers′uncertainty in illness,caregiver gender,availability of other caregivers,caregivers′hope entered the multiple stepwise regression equation,which could explain 20.4%of the total variation of resilience.Conclusions The preparation of the primary caregivers for children with acute leukemia is at a medium level.The primary caregivers who are male,who have insufficient knowledge of the disease,who have no co-caregivers,and who have low hope level should be focused on in clinical practice.Pertinent measures should be taken to improve care preparedness and care quality.
作者
王俊霞
郑红
张慧敏
杨苗苗
Wang Junxia;Zheng Hong;Zhang Huimin;Yang Miaomiao(State Key Laboratory of Experimental Hematology,National Clinical Research Center for Blood Diseases,Haihe Laboratory of Cell Ecosystem,Institute of Hematology&Blood Diseases Hospital,Chinese Academy of Medical Sciences&Peking Union Medical College,Tianjin 300020,China;School of Nursing,Tianjin Medical University,Tianjin 300070,China)
出处
《中国实用护理杂志》
2024年第1期51-57,共7页
Chinese Journal of Practical Nursing
