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白癜风患者生活质量评估的电子问卷调查分析

Electronic Questionnaire Survey and Analysis on the Quality of Life in Vitiligo Patients
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摘要 目的评估白癜风患者生活质量,并评价中文版白癜风专用生活质量量表(VitiQoL)的信度和效度。方法将白癜风患者的一般情况问卷、皮肤病生活质量指数(DLQI)、中文版VitiQoL通过电子问卷的形式进行调查,对调查结果进行统计分析。结果共回收有效问卷151份,其中21.19%的患者合并自身免疫性疾病及其他系统疾病,16.56%患者有阳性家族史,患者DLQI均值(4.66±4.74)分,中文版VitiQoL均值(51.19±19.96)分;DLQI因素分析提示病情严重程度与DLQI呈正相关(P<0.05);中文版VitiQoL多因素分析提示,该评分与年龄、受累部位及病情严重程度均有关(均P<0.05),其中病情严重程度与中文版VitiQoL评分呈正相关。中文版VitiQoL的校正后克朗巴赫α系数为0.955,信度较好;各问题间的相关系数均小于各问题与量表总评分的[(0.106~0.805)比(0.405~0.881)],有较好的内容效度。因子分析获得特征根>1的因子共2个,累计贡献率69.85%,提示该量表有较好的结构效度。中文版VitiQoL评分与DLQI评分相关性分析结果显示二者Spearman相关系数r值为0.599(P<0.01)。结论中文版VitiQoL有良好的信度和效度,可用于中国白癜风患者生存质量的评估。 Objective In order to evaluate the quality of life of vitiligo patients and the reliability and validity of the Chinese version of the vitiligo-specific quality-of-life instrument(VitiQoL).Methods The electronic questionnaires of general conditions of patients,dermatology life quality index(DLQI),Chinese version of VitiQoL were sent to vitiligo patients,and then the collected data were analyzed.Results A total of 151 valid questionnaires were collected,of which 21.19%patients combined with other autoimmune diseases and systemic diseases,and 16.56%patients had a positive family history.The mean values of DLQI and Chinese version of VitiQoL for vitiligo patients were 4.66±4.74 and 51.19±19.96,respectively.The factor analysis of DLQI showed the score was related to the severity of vitiligo(P<0.05).Chinese version of VitiQoL showed that the score was related to the age,affected sites and severity of the disease(all P<0.05),and the severity of vitiligo was directly proportional to the VitiQoL score.The Chinese version of VitiQoL showed high internal consistency(Cronbachα=0.955).The r values of the correlation coefficients among all questions of the scale were smaller than the ones of each question and the total scale score[(0.106~0.805)vs.(0.405~0.881)],which indicated that the scale had good content validity.Factor analysis produced two factors with eigenvalues>1.0,which explained 69.85%of the variance and this indicated that the scale had good construt validity.The correlation analysis results showed the Spearman's correlation coefficient between DLQI and Chinese version of VitiQoL scores was 0.599(P<0.01).Conclusion The Chinese version of VitiQoL can be used to evaluate the quality of life of Chinese patients with vitiligo and has good reliability and validity.
作者 王惠芬 王春又 周小芳 张颖 黄慧 翟志芳 Wang Huifen;Wang Chunyou;Zhou Xiaofang;Zhang Ying;Huang Hui;Zhai Zhifang(The First Affiliated Hospital,Army Medical University,Chongqing 400038,China;Army Medical University,Chongqing 400038,China)
出处 《中国中西医结合皮肤性病学杂志》 CAS 2023年第5期412-416,共5页 Chinese Journal of Dermatovenereology of Integrated Traditional and Western Medicine
基金 重庆科卫联合医学研究项目(编号:2021MSXM118)。
关键词 白癜风 电子问卷调查 生活质量 中文版白癜风专用生活质量量表 Vitiligo Electronic questionnaire Quality of life Chinese version of vitiligo-specific quality-of-life instrument
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