摘要
目的探讨自我管理模式在接受迷走神经刺激术的药物难治性癫痫患者中的应用及效果。方法选取2020年11月至2021年5月在中国科学技术大学附属第一医院(安徽省立医院)癫痫外科接受迷走神经刺激术的20例药物难治性癫痫患者,出院后由干预小组远程进行自我管理模式的强化指导作为自我管理模式组;另外选取2020年1月至2020年10月未进行远程指导的自我管理模式干预的20例接受迷走神经刺激术的药物难治性癫痫患者作为非自我管理模式组;分别在术前和随访终点(术后第12个月)应用癫痫患者生活质量评定量表(QOLIE-31)、自我管理量表(ESMS)及自我效能量表(GSES)进行评分,比较两组患者的生活质量、自我管理和自我效能。结果两组患者的QOLIE-31各维度得分在随访终点均显著高于术前。在随访终点时,自我管理模式组患者在QOLIE-31的总体生活质量、发作担忧、药物影响及社会活动限制的4个维度得分和在GSES得分,以及在ESMS的药物管理、信息管理、安全管理、癫痫管理及生活方式管理5个子量表得分均高于非自我管理模式组,差异有统计学意义(P<0.05)。结论药物难治性癫痫患者迷走神经刺激术后的自我管理模式有助于提高患者及家属管理自身状况的知识,提升自我效能,改善其生活品质。
Objective To explore the application and effect of self-management model in patients with drug refractory epilepsy(DRE)after vagus nerve stimulation(VNS).Methods From November 2020 to May 2021,20 patients with DRE after VNS in the Department of Epilepsy Surgery,the First Affiliated Hospital of University of Science and Technology of China(Anhui Provincial Hospital)were selected as self-management model group,which was given remotely intensive guidance by an intervention team after discharge.From January 2020 to October 2020,20 patients with DRE after VNS were selected as non-self-management model group,which was not given remotely intensive guidance after discharge.Before surgery and at the end of follow-up(at 12th month after surgery),Quality of life in epilepsy-31 inventory(QOLIE-31),Epilepsy Self-Management Scale(ESMS)and general self-efficacy scale(GSES)were used to score and compare the quality of life,self-management and self-efficacy scale between two groups.Results QOLIE-31 scores in its subscales of the two groups were significantly higher at the end of follow-up than those before surgery.At the 12th month after surgery(i.e.,the end of follow-up),the scores in four QOLIE-31 subscales(overall quality of life,seizure worry,medication effects and social activity restriction),GSES and five ESMS subscales(medication management,information management,safety management,seizure management and lifestyle management)were higher in self-management model group than non-self-management model group(P<0.05).Conclusion A self-management model in patients with DRE after VNS is helpful to improve the knowledge of patients and their families in managing their own conditions,promote self-efficacy and improve their quality of life.
作者
郭玉洁
陈小利
解紫晋
项张平
洪丽
靳玉萍
GUO Yujie;CHEN Xiaoli;XIE Zijin(Department of Neurosurgery&Department of Epilepsy Surgery,the First Affiliated Hospital of University of Science and Technology of China(Anhui Provincial Hospital),Hefei(230001),Anhui,China)
出处
《癫痫与神经电生理学杂志》
2022年第6期341-346,共6页
Journal of Epileptology and Electroneurophysiology(China)
基金
安徽省科技攻关计划项目(1804h08020244)。
关键词
癫痫
迷走神经刺激术
自我管理模式
生活质量
epilepsy
vagus nerve stimulation
self-management model
quality of life
