摘要
目的研究先天性心脏病疾病经济负担,为卫生管理部门有关决策提供依据。方法采用流行病学随访研究方法,对2017年1月至2017年12月广州市某三甲医院接受外科手术治疗的先天性心脏病患儿(家长)进行随访,进行数据搜集。分析先天性心脏病患儿的直接疾病经济负担、间接疾病经济负担、无形疾病经济负担。结果收集有效问卷105份,其中男性67例,女性38例;2~4岁63例、5~7岁42例。住院前、住院期间、出院后直接医疗疾病经济负担为1 1730(7 700~21 000)元、37 555(33 651~42 986)元、600(240~1 000)元,差异有统计学意义(P<0.000 1);直接非医疗疾病经济负担为328(111~1 103)元、712(352~1 212)元、110(50~500)元,差异有统计学意义(P<0.001);间接疾病经济负担为0(0~720)元、1 125(200~3 000)元、400(100~900)元,差异有统计学意义(P<0.001)。患儿出院后生存质量得分损失值幅度比住院前降低,差异有统计学意义(18.1分vs.28.2分,P=0.000 5)。结论先天性心脏病给家庭、社会带来巨大疾病经济负担,以直接医疗疾病经济负担为主;并且以住院期间、住院前直接医疗疾病经济负担为主。出院后先天性心脏病患儿生存质量得分损失值幅度得到降低,生存质量得到提高。
Objectives To study the economic burden of diseases caused by congenital heart disease(CHD)in order to provide a scientific basis for decision-making from the health management departments.Methods An epidemiological follow-up study was carried out to follow up the patients(parents)with CHD who received surgical treatment from Juanary 2017 to December 2017 in a third class hospital in Guangzhou,and the data was collected.The direct economic burden,indirect economic burden and intangible economic burden of the disease in children with CHD were analyzed.Results About 105 valid questionnaires were collected,including males 67 and females 38 cases;2-4 years old 63 cases and 5-7 years old 42 cases.The direct medical economic burden of diseases before,during and after hospitalization were 11730(7700-21000),37555(33651-42986),600(240-1000)yuan,respectively,with statistically significant(P<0.0001).The direct non-medical economic burden of diseases before,during and after hospitalization were 328(111-1103),712(352-1212),110(50-500)yuan,respectively,with statistically significant(P<0.001).The indirect economic burden of diseases before,during and after hospitalization were 0(0-720),1125(200-3000),400(100-900)yuan,respectively,with statistically significant(P<0.001).The medians of score-loss in quality of life(QOL)before and after hospitalization were 28.2 and 18.1,respectively,with statistically significant(P=0.0005).The lossrange of QOL-score was reduced after hospitalization.Conclusions A huge economic burden of diseases to family and society was caused by CHD.It was mainly direct-medical economic burden of diseases,and it was mainly direct-medical economic burden of diseases during hospitalization and before hospitalization.After hospitalization,the loss-range of QOL-score in CHD-children was reduced,and QOL of CHD-children was improved.
作者
王妙如
蔡嘉辉
邓木兰
江夏杏
李河
WANG Miao-ru;CAI Jia-hui;DENG Mu-lan;JIANG XIA-xing;LI He(Guangdong Cardiovascular Institute,Guangdong Provincial People′s Hospital,Guangdong Academy of Medi-cal Sciences,Guangzhou 510080,China;School of Public Health,Guangdong Pharmaceutical University,Guangzhou 510080,China)
出处
《岭南心血管病杂志》
CAS
2020年第6期699-703,共5页
South China Journal of Cardiovascular Diseases
基金
广东省科技计划项目(项目编号:2014A020212248,2011B031800009,20128032000014)。
关键词
先天性心脏病
疾病经济负担
直接医疗疾病经济负担
直接非医疗疾病经济负担
间接疾病经济负担
无形疾病经济负担
congenital heart diseases
economic burden of diseases
direct medical economic burden of diseases
direct non-medical economic burden of diseases
indirect economic burden of diseases
intangible economic burden of diseases
