摘要
目的深入探究育龄期男性血友病患者的心理感受,为护理工作者设计和实施个性化的有效干预策略提供依据。方法以目的抽样法对南京大学医学院附属鼓楼医院血友病诊疗中心10例育龄期男性血友病患者进行半结构式深度访谈,采用Colaizzi 7步分析法分析资料。结果提炼3大主题:情感体验(回避与正视、害怕与渴望、担忧与困惑、坚持与希望);人际交往的心理体验(期待与自卑);疾病获益感。结论男性血友病患者在育龄期具有多样且复杂的真实心理体验,医护人员对此类阶段的患者制定针对性的个性化的健康教育策略,使其更好地接受预防与治疗,提高生命质量和人口素质。
Objective To further explore the self-knowledge and real experience of hemophilia patients in childbearing age,and provide evidence for nursing workers to design and implement personalized effective intervention strategies.Methods A semi-structured in-depth interview was conducted among 10 hemophilia patients of hemophilia clinic in our hospital with the purpose sampling method.The data were analyzed by Colaizzi 7-step analysis.Results Three major themes were refined:emotional experience(role change,fertility anxiety,lack of self-confidence in interpersonal relationships);lack of knowledge;disease benefit.Conclusion Patients with hemophilia have diverse and complex real psychological experiences during childbearing age.Medical staff develop targeted and personalized health education strategies for patients at this stage to better prevent and treat them and improve their quality of life.Population quality.
作者
褚红
傅荣
孙博玮
沈茜
万李
Chu Hong;Fu Rong;Sun Bowei;Shen Xi;Wan Li(Department of Hematology,Affiliated Drum Tower Hospital of Nanjing University Medical College,Nanjing 210008,China;Internal Medicine,Affiliated Drum Tower Hospital of Nanjing University Medical College,Nanjing 210008,China;School of Nursing,Nanjing University of Chinese Medicine,Nanjing 210046,China)
出处
《中国实用护理杂志》
2020年第14期1062-1067,共6页
Chinese Journal of Practical Nursing
关键词
血友病
男性
育龄期
真实体验
质性研究
Hemophilia
Man
Childbearing age
Real experience
Qualitative research
