摘要
目的:探讨多学科协作模式在肾病综合征(NS)患儿家庭管理中的应用效果。方法:将2016年7～12月收治的60例患儿为对照组,仅接受肾病综合征常规护理;将2017年1～6月收治的60例患儿为观察组,采用多学科协作模式;于干预前、干预6个月后应用家庭管理测量量表(Fa MM)、儿童生存质量普适性核心量表(Peds QLTM)评价干预效果。结果:干预6个月后,观察组Fa MM中患儿日常生活、疾病管理能力、父母相互支持3个分量表得分明显高于对照组(P <0. 05),而疾病管理困难、疾病精力消耗、疾病相关担心3个分量表得分明显低于对照组(P <0. 05);干预6个月后,观察组Peds QLTM总分及情感功能、社会功能、角色功能3个维度得分均明显高于对照组(P <0. 05)。结论:采用多学科协作模式对NS患儿进行家庭管理干预,可以改善患儿的家庭管理状况,提高患儿的生存质量,值得临床推广。
Objective:To explore the application effects of multidisciplinary collaboration model in family management of children with nephrotic syndrome(NS).Methods:60 children admitted from July to December 2016 were in the control group,and only received routine care for nephrotic syndrome;60 children admitted from January to June 2017 were observed groups and adopted a multidisciplinary collaboration model;The interventional effect was assessed using the Family Management Measurement Scale(FaMM)and the Child Quality of Life Universal Scale(PedsQLTM)before intervention and 6 months after intervention.Results:After 6 months of intervention,the scores of daily life,disease management ability and parental support of the subgroups in the observation group were significantly higher than those in the control group(P<0.05).The scores of disease management,disease energy consumption,and diseaserelated concerns were significantly lower than those of the control group(P<0.05).After 6 months of intervention,the scores of PedsQLTM and emotional function,social function and role function in the observation group were significantly higher than those in the control group(P<0.05).Conclusion:The use of multidisciplinary collaboration mode for family management intervention in children with NS can improve the family management status of children and improve the quality of life of children,which is worthy of clinical promotion.
作者
杨娟娟
陈英
崔金锐
张晓乐
叶天惠
Yang Juanjuan;Chen Ying;Cui Jinrui;ZHANG Xiaole;YE Tianhui(Tongji Hospital of Tongji Medical College Affiliated to Huazhong University of Science and Technology,Wuhan Hubei 430030,China)
出处
《齐鲁护理杂志》
2018年第21期28-31,共4页
Journal of Qilu Nursing
基金
2016年同济医院科研基金项目(编号:2016B011)
关键词
多学科协作模式
儿童
肾病综合征
家庭管理
生存质量
Multidisciplinary collaboration mode
Child
Nephrotic syndrome
Family management
Quality of life
