摘要
目的 :了解社区晚期癌症患者家属面对亲人离世的心理状态。方法 :采用立意取样选取26例接受着或接受过社区临终关怀的晚期癌症患者家属(18例患者已离世),进行3次小组式访谈,了解家属在面对亲人患重病即将离世前的思考、行为及感受,用质性研究的现象学分析法收集整理资料、分析提炼主题。结果 :主题一,家属对亲人的离世有客观认识,但多数不能坦然面对,只有少数能保持情绪稳定;主题二,家属回避与患者谈论死亡相关话题,患者对死亡存在不同程度的恐惧与逃避,有宗教信仰者除外。结论 :家属现有的死亡观念不符合"优逝"理念,但可通过"优逝"教育逐步改变;而通过满足心理需求,给予心理支持为切入点,在日常关怀工作中慢慢递进的"优逝"教育方法针对性强,效果较好,有一定的社区医疗实践指导意义。
Objective： To explore the attitude to advanced cancer and death among family members of advanced cancer patients, and to explore the significance of good death education in community palliative care. Method： We recruited 26 advanced cancer patients＇ （18 of the 26 patients died） family members who accepted community palliative care using purposive sampling method. We conducted 3 group interviews to collect the data about the reflection, behavior, and feelings of the family members and analyzed the data by the phenomenological approach. Results： We got two themes. One was that the family members had objective understanding of their relatives＇ death, but most of them could not face the reality calmly. Another was that most family members avoided to talk about the death with the patients themselves and most patients had fear and evasion to death, except few believer of religion. Conclusion： The community advanced cancer patients and their family members＇ attitudes of death are not in accordance with good death concept. We could improve their attitude step by step through good death education. The death education in community should start from the family members by satisfying their psychology needs and providing their psychological support.
作者
王凌云
韩琤琤
路琦
金琳
刘晓惠
陈小冬
郗然
赵玉娇
WANG Lingyun HAN Zhengzheng LU Qi JIN Lin LIU Xiaohui CHEN Xiaodong XI Ran ZHAO Yujiao(Nursing Department, Beijing Xicheng District Desheng Community Health Service Center, Beijing, 100120 China)
出处
《中国护理管理》
CSCD
2016年第12期1703-1707,共5页
Chinese Nursing Management
基金
2014年度国家社会科学基金项目(14BGL215)
关键词
家属
优逝
死亡回避
死亡恐惧
质性研究
family members
good death
death avoidance
fear of death
qualitative research
