摘要
目的通过随访2~12岁先天性心脏病（先心病）患儿手术后的生长发育和生活质量情况,探讨其生长发育与生活质量的相关性。方法2009年5—8月对2008年实施手术的先天性心脏病患儿258例进行随访。采用心脏疾病儿童生活质量量表（PedsQLTM Cardiac Module）及自制的生长发育信息表。儿童生活质量包括心脏疾病和治疗问题、对身体外貌的感受、治疗焦虑、认知问题以及交流5个方面。儿童生长发育采用Z积分评价。结果先心病患儿术后生活质量平均得分（73.06±15.59）分,生长发育各指标Z积分均在±2以内,在正常范围水平。在患儿身高、体重方面,患儿疾病严重程度对其有影响,P值〈0.05,而青紫型与非青紫型先心病患儿之间生长发育水平差异无统计学意义。不同疾病类型与严重程度的患儿生活质量比较差异无统计学意义。患儿生活质量与身高、体重Z积分成正相关,P值〈0.05,与头围、胸围Z积分关联性不显著。结论先心病患儿术后生长发育水平在正常范围,其生长发育水平与生活质量存在相关性,生长发育水平越好,则生活质量越好。建议增加患儿术后营养支持,有助于改善患儿生长发育水平,从而提高患儿生活质量水平。
Objective To analyse the relationship between quality of life and growth and development of 2-12 years old children with congenital heart disease after heart surgery.Methods The quality of life and growth and development of 258 children with congenital heart disease after heart surgery in our hospital in 2008 were surveyed from May to August 2009.PedsQLTM Cardiac Module（Chinese version） and self-designed growth and development questionnaire were used.PedsQLTM Cardiac Module included the heart diseases and treatment issues,perceived physical appearance,anxiety,cognitive problems and communication.The children＇s growth and development was evaluated by Z score.Results The mean score of quality of life of children with congenital heart disease after surgery was 73.06±15.59.Z score of children′s growth and development was within ±2（within the normal range）.The severity of disease significantly influenced children＇s height and weight（P0.05）,but there were no differences in growth and development between cyanotic and non-cyanotic children.The disease type and severity before operation were not related with quality of life after operation.The children＇s quality of life were positively correlated with height and weight（P〈0.05）,not correlated with head circumference and thoracic circumference.Conclusion The growth and development of children with congenital heart disease after heart surgery is within the normal range,which is correlated with their quality of life.Better growth and development means better quality of life.The postoperative nutrition support should be enhanced to improve their growth and development,thus improving their quality of life.
出处
《上海护理》
2010年第2期8-11,共4页
Shanghai Nursing
基金
世界健康基金会资助
课题编号(HOPE-05504-NR)
关键词
先天性心脏病
生长发育
生活质量
Congenital heart disease
Growth and development
Quality of life
