在体外循环下为1例终末期特发性肺纤维化合并肺动脉高压患者施行右侧单肺移植术,供肺采用改良LPD液灌洗,冷缺血205 m in,管道吻合55 m in,体外循环120 m in。术后采用环孢素A、激素及骁悉三联免疫抑制治疗。移植肺术后即刻发挥功能,术后...在体外循环下为1例终末期特发性肺纤维化合并肺动脉高压患者施行右侧单肺移植术,供肺采用改良LPD液灌洗,冷缺血205 m in,管道吻合55 m in,体外循环120 m in。术后采用环孢素A、激素及骁悉三联免疫抑制治疗。移植肺术后即刻发挥功能,术后第4天因胸腔内渗血多再次开胸止血并清除血块,次日撤呼吸机,恢复良好,第37天康复出院。认为特发性肺纤维化合并肺动脉高压是肺移植的适应证之一,术中是否应用体外循环应慎重评估,术后尤应注重出血的监测和控制。展开更多
Objective:This study aimed to explore the lived experiences of the disease journey and patients'care needs with idiopathic pulmonary fibrosis(IPF).Methods:Face-to-face semi-structured interviews were conducted wit...Objective:This study aimed to explore the lived experiences of the disease journey and patients'care needs with idiopathic pulmonary fibrosis(IPF).Methods:Face-to-face semi-structured interviews were conducted with a purposive sampling of IPF patients admitted to the department of respiratory medicine in a tertiary hospital in Beijing.Interview data were analyzed using the thematic analysis method.In the end,16 patients were interviewed.Results:Four themes emerged from the qualitative data included the long and confusing journey to reach a diagnosis,living with the disease,understanding the disease and treatment and desire for continuity of care.A series of subthemes were also identified,including uncertainty of diagnosis,delaying the process,living with physical symptoms,living with emotional distress,loss of independence,uncertainty with the prognosis,questioning the cause of the disease,concerning the side effects of treatments,lacking continuity of care,and wanting a better quality ofhealthcare in community hospitals.Conclusions:Based on the findings,there is an urgent need to improve the care delivery to this vulnerable population in China.To meet their health needs,it is of paramount importance to develop effective education programs for health professionals and IPF patients and improve care models of healthcare systems,especially in remote areas,to enhance care continuity in the communities.展开更多
文摘在体外循环下为1例终末期特发性肺纤维化合并肺动脉高压患者施行右侧单肺移植术,供肺采用改良LPD液灌洗,冷缺血205 m in,管道吻合55 m in,体外循环120 m in。术后采用环孢素A、激素及骁悉三联免疫抑制治疗。移植肺术后即刻发挥功能,术后第4天因胸腔内渗血多再次开胸止血并清除血块,次日撤呼吸机,恢复良好,第37天康复出院。认为特发性肺纤维化合并肺动脉高压是肺移植的适应证之一,术中是否应用体外循环应慎重评估,术后尤应注重出血的监测和控制。
基金The study was supported by grants from Beijing Excellent Talents Training Programme(2018000021469G220)Beijing Hospitals Authority Youth Programme(QML20200309),Beijing,China.
文摘Objective:This study aimed to explore the lived experiences of the disease journey and patients'care needs with idiopathic pulmonary fibrosis(IPF).Methods:Face-to-face semi-structured interviews were conducted with a purposive sampling of IPF patients admitted to the department of respiratory medicine in a tertiary hospital in Beijing.Interview data were analyzed using the thematic analysis method.In the end,16 patients were interviewed.Results:Four themes emerged from the qualitative data included the long and confusing journey to reach a diagnosis,living with the disease,understanding the disease and treatment and desire for continuity of care.A series of subthemes were also identified,including uncertainty of diagnosis,delaying the process,living with physical symptoms,living with emotional distress,loss of independence,uncertainty with the prognosis,questioning the cause of the disease,concerning the side effects of treatments,lacking continuity of care,and wanting a better quality ofhealthcare in community hospitals.Conclusions:Based on the findings,there is an urgent need to improve the care delivery to this vulnerable population in China.To meet their health needs,it is of paramount importance to develop effective education programs for health professionals and IPF patients and improve care models of healthcare systems,especially in remote areas,to enhance care continuity in the communities.
