Adherence to thalassemia treatment including chelation drugs is influenced by numerous factors. This study aims to explore beliefs about iron chelation therapy and adherence to this medication in Jordanian children wi...Adherence to thalassemia treatment including chelation drugs is influenced by numerous factors. This study aims to explore beliefs about iron chelation therapy and adherence to this medication in Jordanian children with thalassemia major. In this descriptive cross-sectional study, seventy three patients were selected conveniently to complete the study instruments. Participants reported high adherence to their chelation therapy (88.1%). The majority (87.6%) expressed necessity for chelation therapy. However, 42.18% of the participants expressed their concerns about the therapy in which 57.9% of them showed concerns about dependency on medicine and 46.4% of them revealed concerns about the long-term effect of medicine. Overall, about 12.9% of the participants recorded correct and complete answers about thalassemia and its treatment. Knowledge about thalassemia and concerns about chelation were not significantly associated with adherence to the chelation therapy (r = 0.32, p = 0.19;r = 0.29, p = 0.25, respectively). However, there was a significant positive relationship between beliefs about the necessity of the therapy and adherence to it (r = 0.38, p = 0.03). In conclusion, Jordanian children showed proper adherence to their chelation therapy. Health care professionals should discuss patients’ concerns about chelation therapy which might increase patients’ adherence to their therapy.展开更多
Having cancer during adolescence stage causes stressors in patients’ lives. They are responsible for dealing with many new situations and stressors. Coping with such stressors can be influenced by psychosocial factor...Having cancer during adolescence stage causes stressors in patients’ lives. They are responsible for dealing with many new situations and stressors. Coping with such stressors can be influenced by psychosocial factors. This study aimed to explore the impact of psychosocial support on adolescents with cancer. A qualitative exploratory design was used to understand the experience of psychosocial support from the perspectives of the patients. Twenty adolescents with cancer were selected purposefully from two major cancer treatment centers in Jordan. Semi-structured face-to-face interviews were used to obtain the participants’ perspectives. Data were analyzed using thematic analysis approach. Findings revealed three major themes: “supportive structure”, “precious aspects of psychosocial support”, and “cancer could be defeated”. Participants expressed their satisfaction with the psychosocial support provided to them. However, they asked for further improvement in hospital facilities, playrooms and leisure activities. In conclusion, having a strong psychosocial support system will help adolescents to cope with cancer. Family, friends, and the surrounding environment are the key elements in installing hope and helping adolescents to go through cancer experience. Nurses are advised to adopt these psychosocial keys in order to create age-related activities that would improve the patients’ coping with cancer.展开更多
文摘Adherence to thalassemia treatment including chelation drugs is influenced by numerous factors. This study aims to explore beliefs about iron chelation therapy and adherence to this medication in Jordanian children with thalassemia major. In this descriptive cross-sectional study, seventy three patients were selected conveniently to complete the study instruments. Participants reported high adherence to their chelation therapy (88.1%). The majority (87.6%) expressed necessity for chelation therapy. However, 42.18% of the participants expressed their concerns about the therapy in which 57.9% of them showed concerns about dependency on medicine and 46.4% of them revealed concerns about the long-term effect of medicine. Overall, about 12.9% of the participants recorded correct and complete answers about thalassemia and its treatment. Knowledge about thalassemia and concerns about chelation were not significantly associated with adherence to the chelation therapy (r = 0.32, p = 0.19;r = 0.29, p = 0.25, respectively). However, there was a significant positive relationship between beliefs about the necessity of the therapy and adherence to it (r = 0.38, p = 0.03). In conclusion, Jordanian children showed proper adherence to their chelation therapy. Health care professionals should discuss patients’ concerns about chelation therapy which might increase patients’ adherence to their therapy.
文摘Having cancer during adolescence stage causes stressors in patients’ lives. They are responsible for dealing with many new situations and stressors. Coping with such stressors can be influenced by psychosocial factors. This study aimed to explore the impact of psychosocial support on adolescents with cancer. A qualitative exploratory design was used to understand the experience of psychosocial support from the perspectives of the patients. Twenty adolescents with cancer were selected purposefully from two major cancer treatment centers in Jordan. Semi-structured face-to-face interviews were used to obtain the participants’ perspectives. Data were analyzed using thematic analysis approach. Findings revealed three major themes: “supportive structure”, “precious aspects of psychosocial support”, and “cancer could be defeated”. Participants expressed their satisfaction with the psychosocial support provided to them. However, they asked for further improvement in hospital facilities, playrooms and leisure activities. In conclusion, having a strong psychosocial support system will help adolescents to cope with cancer. Family, friends, and the surrounding environment are the key elements in installing hope and helping adolescents to go through cancer experience. Nurses are advised to adopt these psychosocial keys in order to create age-related activities that would improve the patients’ coping with cancer.
